Gail Porter has always been a beautiful young woman and a very popular celebrity in Britain and Europe. Now she is also a hero and an inspiration to millions of alopecians around the world for the brave way she handled her very public experience as a newly diagnosed alopecia patient last year. You can Google Gail and find thousands of articles and fan sites about her. Go ahead and try it! Here are a few to get you started: Daily Mail, The Guardian, BiggestStars.com.
Team Superstar: Margaret Baker
Margaret is a formidable quadruple threat- Model/Actress/Playwright/Motivational Speaker. She has also had alopecia since she was two and a half. Ms. Baker is obviously gorgeous, but she fought hard for the inner strength to be the confident, successful woman she is today. Take a few minutes to discover more about this multi-talented young woman. And be sure to keep an eye out for her in the stage play "My Life As A Bald Soprano"
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Being a kid is hard enough, but being a kid with alopecia can be down-right difficult. Fortunately there are some fantastic organizations that offer support, friendships, and fun to kids who are dealing with this disease. There is the Children's Alopecia Project (the photo at left is from their camp), the I'm a Kid Foundation, and Locks of Love. There are cool dolls for kids of all ages, as well as web sites and coloring books.
This is a really fascinating article that was in 'Discover' magazine. Trust us, and read it. It's title in the magazine is "When Women Go Bald: A scientist's painful battle with balding drives her to find the genetic basis for hair loss". Dr. Angela Christiano had a bout with alopecia areata a few years ago and is a highly respected geneticist. Here is just a bit from the article:
Recently, geneticists have started closing in on clues that might lead to treatments for Fadida's disease. {ed:Fadida's disease is alopecia} Their efforts are part of a larger push to study more than 300 known genetic hair disorders, which range from rare diseases detected in a few dozen families to male-pattern baldness, which affects hundreds of millions. What all these diseases likely share is a disruption somewhere in the complicated growth cycle of the hair follicle.
As Fadida spoke, one scientist in the group listened with particular interest. Angela Christiano, a molecular geneticist at Columbia University in New York City, presented a dramatic contrast to Fadida, mostly because of her hair. A veritable fountain of it rises high above Christiano's skull and cascades past her shoulders in bursts of onyx and bronze. Elaborately colored and curled, it is more sculpture than hairdo, and inescapably the first thing anyone notices about her.
Despite appearances, Christiano knew exactly what the young Israeli was feeling. Diagnosed in 1996 with alopecia areata, the geneticist lost 10 large clumps from her magnificent mane before symptoms finally abated.
Since then, Christiano has cracked the genetic code of three hair diseases. Now she wants to pin down the mutations that caused Fadida's hair loss, and in doing so, figure out what caused her own.
The article is pretty long, but seriously, if you are interested in the high level research into hairloss and alopecia, this is just a must read.
Lots of kids like dolls that look like them. One need only look at the great success of companies like American Girl to see that. But kids who are dealing with hair loss find that there options are pretty limited. One enterprising mom in Colorado went out of her way to see that her daughter had a doll that she could relate to. This excerpt was originally printed in The Gazette, in Colorado Springs:
A doll is being specially made for Maddie Werner -- one that will look a lot like the second-grader. It will have pale skin, a few freckles and will wear either jammies or a soccer uniform. And like Maddie, it won't have hair.
Maddie, 7, has lost her curly goldenbrown locks -- her "princess hair," as she called it. She's also lost her brows and lashes because of a condition called alopecia areata, an autoimmune disease that attacks hair follicles.
The condition isn't contagious, isn't lifethreatening and isn't painful. Maddie is otherwise healthy. Still, her mother, Lisa Werner, worries about her.
"I think that girls or women have a lot of identity tied up in hair," Lisa Werner said.
Sometimes life isn't fair, and sometimes Life Isn't Fair. The Mirror is reporting the heartbreaking story of Louise Gibson and her struggle with alopecia since she was nine. And now she must watch as her own daughter copes with the same disease. Starting at 18 months old, little Nikkita began to lose all of her hair as well. So not right...right? Well it seems the children will lead the way on this one, and Louis speaks in the article of how her daughter and her friends are handling her hairloss like champs. She is also hoping to raise enough money to buy her little girl the wig that she dreams of. It's a lovely story, and we thank the Mirror for telling it.
(As a little bit of postscript here, you can link here to a blogger who saw little Nikkita on British TV and their thoughts on her appearance. We don't judge 'em folks, we just post 'em. Post what you think.....)
Our dear Gail Porter, a well deserved Superstar here at Team Alopecia, has been out partying in London to celebrate her divorce from guitarist Dan Hipgrave. The press is being a tad bit snippy in our opinion about Gail's having a rowdy night out. "Give a girl a break!" we say. She is normally found out and about and on her television program without a wig (looking lovely we might add). But on this night she decided to don a bright red afro wig! Here at Team Alopecia Headquarters our only question is "why Weren't WE INVITED!" Rock on, girl.
Here is an excerpt from a recent story from "InsideToronto.com":
It was about a year ago this week that Helen Rose first noticed a little bald spot on her daughter's head while parting her hair down the middle.
Upon closer look, she realized that nine-year-old Victoria had extensive hair loss on the back of her head, too.
The patches of baldness were initially covered by her long, thick brown hair that grew from the top. But the remaining strands soon fell out as well.
An appointment with a doctor the next day at Sunnybrook Health Sciences Centre, where Rose works as an administrative assistant, confirmed what she had researched on the Internet.
Victoria was diagnosed with alopecia, an unpredictable autoimmune disease that results in hair loss on the scalp and elsewhere on the body.
"The way we explain it to kids is that the body is allergic to its hair," said Rose, whose goal is to educate as many people on her daughter's condition.
So here's the big question that has the alopecia blogs humming.... Mr. Everett has apparently told London's "Daily Telegraph" that he is now infertile due to medication he is taking to control his alopecia. He has reportedly stated that if he were to stop taking the drug he would lose his hair, and given the choice between his hair and his sperm, he chooses his hair. Now what medication could that be? Some bloggers and forums are suggesting that he is really on anti-baldness (the male-pattern variety) medication and that he is merely calling it alopecia (which, of course, technically it is) to hide the fact that he has MPB. There is also a great deal of dissing Rupert for choosing his hair over the chance to be fertile. This seems a bit of an unnecessary slap to the man as he is nearing fifty and very openly gay. Seems that he has already made his reproductive decisions.
Joyce Sherman, a team member who lives in Chelmsford, Massachusetts, will be featured on an upcoming episode of "Miami Ink" on The Learning Channel. She is apparently being featured on the program as she goes to the tattoo shop to get a tattoo of a butterfly inked onto the back of her head. Sherman, who has had alopecia on and off since she was nine (and whose son also has the disorder), wanted to make a statement with her tattoo that she is proud of the woman she is and that she doesn't need wigs or scarves to be beautiful.
The University of Texas MD Anderson Cancer Center is leading a study that will create a national registry of aopecia patients and their family members. The registry will allow researchers to determine the genetic components of alopecia, and hopefully lead to a better understanding of the disease with an eye toward an eventual cure. It seems that they are having good results with signing up alopecians and their family members, but less luck in finding control subjects. The AlopeciaCare.com site is currently stating that of the 500 control subjects needed, only 22 have been signed on so far. Control subjects must not have alopecia, or be related to anyone who has it. Which naturally excludes those most directly and even indirectly effected by the disorder.