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Alopecia Kids
Children's Alopecia Project Print E-mail

campdiscovery2005caploThe CAP vision statement is as follows:

 It is our goal to improve upon the lives of children suffering from any form of Alopecia by:

  1. Funding a children's support group i.e., a place where they can go and feel supported and comfortable discussing their difficulties and coping mechanisms in dealing with their disease
  2. Raising money to send children who might not be able to attend the annual conference of the National Alopecia Areata Foundation (NAAF)
  3. Donating monies for research on a regular basis
  4. Promoting public awareness through community based events

And the cool people at CAP really do all that, and more.  Summer camp days for alopecia kids, support group meetings, and fundraisers and benefits that put the F-U-N back in fundraising!  By all means check out their website.   And a really easy way to support their efforts on behalf of kids with alopecia, without even leaving the house, is to buy yourself (or your super-cute kid) one of their t-shirts or hats.  Click here to go to the CAP store. 

capkidcampcapkids   capkidsatnaaf

 

 

 

 

 

 
I'm A Kid Foundation Print E-mail

imakidI’m a Kid Foundation understands how difficult and life altering hair loss can be. Losing your hair suddenly is a very traumatic experience, especially for a young child, and although a child may not have hair, they are still a child and need to feel “normal” and loved. Hair loss affects every aspect of the child’s life and that’s why we’re here! Our ultimate goal is to make children with hair loss SMILE. I’m a Kid Foundation supports kids being kids regardless of any medical conditions.

-From the I'm A Kid Foundation website

IAKF has a number of programs and events that will be of interest to parents and kids alike.  They even have a scholarship program!  And if you have a school age child who has alopecia, you might find "Daniels Letter" useful in helping your childs' teachers and classmates to understand your little one's unique situation.

 
Komfy Kids Print E-mail

doll boxOkay, to start with, these dolls are just really cute and fun.  But especially if you are a kid dealing with hair-loss, these dolls can be great friends and companions.  You can get boy dolls or girl dolls, or hey, why not both?  Each doll comes with a removable wig and you can get matching hats and t-shirts for the cute kid and the cute doll.  Awww...... 

The Komfy Kids website describes the magic of their dolls this way:

Cancer & Alopecia Patients:
komfykidsYour child will instantly become attached to their plush Komfy Kids doll as it helps them regain their confidence and self-image, and your child will have a comfortable and fun doll to help them feel good about themselves without hair. Komfy Kids are huggable, loveable, and most of all, they are your child’s best friend.

And kids of all ages seem to agree.  You can also dig the fact that a portion of the proceeds from each sale goes to the "I'm A Kid Foundation". 

 
Fashion Angels Living Dolls Print E-mail

livingdolls This new line of dolls for hip and stylish kids comes with a cool twist for kids with alopecia....the dolls all wear wigs!  Each doll comes with a removable wig and you can get different wigs for your doll to change her look.  

This is how the dolls are described on the www.LivingDolls.com website:

fashionangelswigs · They're plushy with the cutest embroidered faces.
· Fully poseable, with a full body armature.
· They stand 15" tall, but won't reveal their weight.
· Don't tell anyone, but their do's are wigs.
· Last but not least, their wardrobe is to die for.
 
And the wigs that you can get for your Living Doll comes with it's own wig stand and daisy clips for styling.  Cool!

 

 
'My Twinn' Dolls Can Be Made To Order Print E-mail

my twinnSpeaking of dolls, there is a company out of Colorado that is well known for making one-of-a-kind dolls, that look like the child they belong to.  One Mom of an alopecia child recounts her experience with the "My Twinn" doll company on the NAAF website:

Mytwinn.com (eToys Direct, Inc.)'Being a parent of a child with alopecia can be overwhelming and challenging at times, especially in a society that puts a tremendous amount of value on the way you look physically. In the past year, Maegan has mentioned on several occasions that she would like to have a doll that resembled her, a doll with no hair.

My sister, Tricia, mentioned a company called “My Twinn” located in Colorado that makes one of a kind dolls created to look like your child. I wrote “My Twinn” with the following special instructions:

In a world full of “Barbies” and dolls with hair, it is difficult for Maegan to identify with dolls that do not resemble her. As parents, we are asking for your help. We would like for you to make a doll, without hair, with a separate hairpiece that Maegan can take off and on her doll as she wishes. We are requesting the following:

 A “My Twinn” doll that has no hair, eyebrows, or eyelashes

 A separate hairpiece that can be taken on and off the doll. The hairpiece should have bangs and shoulder-length hair, curled under for body and fullness.

Within a period of a month, I received a special doll that looks exactly like my daughter! I am so grateful to companies such as “My Twinn” who make accommodations for special, unique children! Maegan loves her doll and it will accompany her throughout her childhood. '

My Twinn dolls have been featured on the Today Show in the US, and seem to have a lot of happy clients.  (click here to Create a Personalized My Twinn Doll)

 
Hippie and the Bald Chick Print E-mail

hippie and the bald chickThis is a cute website for kids by our own 'Team Superstar' Laura Duksta (aka the Bald Chick in the title) and her friend, the Hippie!  The site has event listings, a little play area, and a really nice little forum for kids, several of whom relate to Laura, as they have alopecia or know someone who has alopecia.  You can also find information on Laura's childrens book "I Love You More" on the site.  Well done Laura!

 
Alopecia Coloring Book Print E-mail

Dr. Manuel Casanova has put together this terrific downloadable coloring book about alopecia areata.  It is called  "Being A Friend".  It is really geared toward kids without alopecia and encouraging empathy for kids who have lost their hair to alopecia.

 

 
More Kids Stuff Print E-mail

locksoflovebearhttp://www.alopeciacare.com/

http://alyssadawn.com/

 
 
MusicSpace.com is the official Kidz Bop Store!


Timez Attack is an amazing new video game exclusively for kids to easily learn multiplication tables. It's as beautifully rendered and entertaining as any top video game, yet as effective as endless flash-card drilling. We include a link to it here only because we have seen it work wonders. Ellie's 7(!)y.o. nephew, who is in special tutoring for his grades, just learned all the times tables (2-12) in a couple months. And he begged to play almost every day. They have a free version as well, so there isn't any reason not to try it if you have a child struggling with multiplication, or one who will be facing it in school soon.

Great Books For Kids (and maybe the school library):