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Being a kid is hard enough, but being a kid with alopecia can be down-right difficult. Fortunately there are some fantastic organizations that offer support, friendships, and fun to kids who are dealing with this disease. There is the Children's Alopecia Project (the photo at left is from their camp), the I'm a Kid Foundation, and Locks of Love. There are cool dolls for kids of all ages, as well as web sites and coloring books.
Children with Hairloss is another helpful organization for kids with alopecia. Here is a direct quote from their mission statement:
"Our Organization was created as a resource for ALL CHILDREN who have medically-related hair loss. It is our mission to empower these children to become whole again by making hair available to those who may be financially challenged and might otherwise not have a means of obtaining the hair they want and need.
Our goal is to assist as many of these children as possible in changing their lives by improving their outlook and empowering them with a degree of self confidence that will allow them to face the world with renewed self esteem.
Our mission is to cover heads and heal young hearts."
They go on to say that:
~Our organization offers assistance in the form of hair replacement to children with any form of short or long term medically related hair loss for chemotherapy, radiation, burns accidents and all types of Alopecia, etc.~
For those who meet their requirements, they may be able to provide free hair replacements and complete care kits up to once a year until the age of 21!
If you live in the USA and in either Boston, Orlando, or Houston , go grab yourself a schedule of the Milwaukee Bucks away games. Actually we'll help you out, as we happen to have one right here. Charlie Villanueva, recently traded from the Raptors to the Bucks, is once again doing Meet & Greets with alopecia kids at selected games. All as a part of his 'Charlie's Angels Road Games Program'. It is a not-to-be-missed opportunity to catch a great basketball game, meet other kids in your area who have alopecia, and the best part... to meet NBA Superstar Charlie V. himself. In fact, ESPN just did a great story on Charlie's meet and greets. Click here to find out more, and don't forget... if you miss him this year, there is a great chance that come November, Charlie will be doing it all again. "Go Bucks!"
This is an interesting thing that we just found out about. Did you know that the well-known Hair Clubs (yes, of the infomercial fame) have a charitable foundation for kids with hair loss? We sure didn't. This little blurb is taken straight from their website:
In 1992, Hair Club founded a non-profit organization to provide free hair restoration for children battling hair loss as a result of illness.
Hair Club understands the importance of self-confidence at an early age. These solutions allow children the confidence to maintain an active and exciting life. We aim to use our knowledge, skill and resources to help kids everywhere experience more.
We found out about this program by reading a post from a teen with alopecia who was talking about getting her wig from them and how much she liked it. If you are interested in finding out more about their program you can link to their website here. And to the young lady who posted about her new wig, thanks a ton. You won't ever know how many other kids you may have helped by your post.
Oh yeah! Locks of Love! This organization is the biggie when it comes to providing wigs to kids with alopecia. They are much beloved by the alopecia and medical hair loss communities, and with very good reason. Here is a little blurb from their website:
Locks of Love is a non-profit organization that provides hairpieces to financially disadvantaged children under age 18 suffering from long-term medical hair loss. We meet a unique need for children by using donated hair to create the highest quality hair prosthetics. Most of the children helped by Locks of Love have lost their hair due to a medical condition called alopecia areata, which has no known cause or cure. The prostheses we provide help to restore their self-esteem and their confidence, enabling them to face the world and their peers.
Locks of Love was featured in a recent issue of Seventeen Magazine. You can click on the magazine cover to watch a video of four teens who donated their hair to help kids with alopecia and other forms of medical hairloss.
If you are under 18 and can't afford a good quality hairpiece, you owe it to yourself to consider applying with this wonderful group.
Team Alopecia is looking for talented young writers to blog about their experiences with alopecia. We will be hosting a Teen Blog and a Kids Blog. Each blog will have several official bloggers, so that no one writer carries the burden of keeping the blog going, and so that readers get the benefit of many viewpoints on what it means to be young and dealing with hairloss.
Each blogger should be willing to write a paragraph or two each month for the site. What you might write about is largely up to you, but should be about your life as an alopecian and what that means to you, and how that effects you. For example, buying a new hat or wig, going to alopecia related events, difficult days, fun days, what you think about having alopecia and how you handle it, going to the doctor, why your best friend is the best....all that stuff. Teens might also include writing about dating and dances, the pressures to fit in, going off to college and meeting new people, etc.
This is an opportunity to help other kids understand that they are not alone. And to create the type of online community for kid and teen alopecians that adults have been enjoying for years. Other kids will be able to comment on the blog entries and engage in a discussion on the topic put forth by the blogger. Of course any comments that are mean-spirited or inappropriate will be removed.
Interested young alopecians should be between the ages of 8-13 for kids, or 14-20 for teens. Please submit 2 blog entry samples (on the topic of your choice) to
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. Don't worry about being especially long or short, just say what you want to say. This is a volunteer position on the site, but you will be credited in whatever manner you choose (although for safety reasons, we can't let you use your real names). Good luck and we hope to be reading your work online very soon!
And don't forget to visit our Kid's Page and Kid's Forum , and our Teen's Page and Teen's Forum. Both forums have public boards for younger alopecians to introduce themselves and talk about their experiences with alopecia, and private "members only" boards for you guys to talk without the whole web being invited in.
Timez Attack is an amazing new video game exclusively for kids to easily learn multiplication tables. It's as beautifully rendered and entertaining as any top video game, yet as effective as endless flash-card drilling. We include a link to it here only because we have seen it work wonders. Ellie's 7(!)y.o. nephew, who is in special tutoring for his grades, just learned all the times tables (2-12) in a couple months. And he begged to play almost every day. They have a free version as well, so there isn't any reason not to try it if you have a child struggling with multiplication, or one who will be facing it in school soon.
Great Books For Kids (and maybe the school library):